So this week is CFS/ME awareness week (11th-17th May 2015) and a friend and fellow ME sufferer shared this post today so I thought I would also have a go to help raise awareness of this awful illness.
Day 1 – a quote relevant to ME, there are a few that i found but this is my fav 🙂
So what is it like having and living with ME?? Have you ever had flu?? i don’t mean just a normal cold I mean proper full on can’t move in incredible pain real flu?? Well if you have that is a glimpse of what its like but with no end in sight. Every day is different some days I am dressed before 9am, others I live in my pj’s because getting dressed requires too much energy. Along with the extreme fatigue and pain comes a whole host of other symptoms, IBS, sore throats, migraines, brain fog, lack of concentration, actual memory loss (not the kind where you walk into a room and forget why your there, walk out then remember. I mean I lose entire sections of memory with no recollection at all), and a whole host of other s too. Don’t get me wrong I have good days and generally don’t moan when I am on a bad day, its life and I just get on with it but this illness can leave you isolated, lonely, feeling like you are always letting people down and just plain scared. I have a mild form of this illness there are some that are completely bed/wheelchair bound and this is why its so important to get some more awareness out there 🙂
I hope I haven’t depressed you all I am happy with my life, I have good friends, a supportive Mr Geek and amazing children, I CAN get out of bed and get myself dressed and care for myself. I am always smiling and laughing. Life is good even with limits 🙂
now here is something fluffy to smile at 😉
Leave a Reply